May is an important month for millions of Americans, because it is month set aside to call attention to what has been a misunderstood and almost invisible disorder: Fibromyalgia
Fibromyalgia is a wide-spread chronic pain condition affecting the muscles,nerves and joints. The pain is often accompanied by sleep disorders and chronic fatigue syndrome. It can be most easily described by comparing it to the worst symptoms of the flu, when your entire body aches and the hurt won’t stop no matter what you do to try to get comfort. I know the symptoms well because I am among the estimated 6 million people in the U.S. living with Fibromyalgia.
If you look at me, and my hectic schedule, you would probably never guess I face a medical challenge everyday. However, the debilitating effects of Fibromyalgia is something all of us as business owners, employers, co-workers, friends and family members need to be more aware of in order to keep FM patients from dropping out of the workforce or isolating themselves from society. That’s why my company, SBTV.com, produced a Fibromyalgia Awareness series consisting of video programs, podcasts, blogs and articles — All designed to help the patient, employer and co-worker understand the realities of this complex disease.
There are events and activities being held around the country this month to raise awareness about Fibromyalgia. For example, on May 15, 2010, in Fullerton, CA there is a “Walk of Fame” If you aren’t in the area, you can find a location close to you or sign-up to participate virtually on the National Fibromyalgia web site. This event is an opportunity for people with Fibromyalgia and their supporters to gather together to show solidarity, celebrate their successes, and raise public awareness.
If you are not able to take part in a local Fibromyalgia Awareness Day event in your area, I hope you will participate in SBTV.com’s blogs and discussion groups. Fibromyalgia is serious and to date there is no cure. But awareness and accommodations in the workplace can make a big difference for those living with Fibromyalgia.