Denver Parents of Duchenne Boys Take Aim at Under-Funded Duchenne Research With Exciting Performances By: Catchpenny and by Phil Solem!
DENVER -- CureDuchenne will once again partner with local parents, Aaron and Shaun Goin, for a rocking charity event, Friday, September 7, 2007. The Denver
"As we face the future, we realize tackling this disorder head-on is the only way we'll ever find a cure," said Aaron Goin, father of two Duchenne boys, Gavin and Logan. "Research for Duchenne is seriously under-funded. Even though this is the most lethal genetic disorder of children worldwide, very few people know about it. They don't know that there is no cure, and most of our boys won't live much past their teens. Funding for Duchenne research is nowhere near the level other, less lethal, childhood disorders receive. We want to put the pressure on finding a cure in time to save our boys.
"We chose CureDuchenne because they aggressively find and fund promising Duchenne research, and share our sense of urgency. They want to be out of the 'Duchenne' business within the next 10 years because a cure's been found, and we want to help them get there. Money makes all the difference. We want to appeal directly to the Denver community and ask that they focus their charitable dollars on this orphan disease and help us bridge the funding gap."
"For the first time, there is hope for Duchenne boys," said Debra Miller, CureDuchenne founder and parent of a Duchenne boy. "Research projects funded by CureDuchenne show promise of offering life-extending and enhancing therapies to these children. It's not a matter of if treatments will be found ... but when. The more support we have now, the more children will be saved. It's only with help from people like the Goins, and the businesses and individuals who generously support them, that we can expedite a cure."
About Duchenne Muscular Dystrophy (DMD)
One in every 3,500 boys worldwide is afflicted with Duchenne muscular dystrophy. They will be in wheelchairs by 12 and, historically, most have not survived their teenage years. Duchenne knows no boundaries and crosses all cultures and races. The gene mutation that causes Duchenne is usually passed from mother to son, but more than one-third of cases are spontaneous. It can happen in any family. There currently is no cure, but for the first time, there are promising therapies on the horizon.
About CureDuchenne
CureDuchenne is a nonprofit organization founded in 2003 by Debra and Paul Miller, parents of a Duchenne boy. CureDuchenne's Vision is its name ... to cure Duchenne muscular dystrophy. CureDuchenne aggressively seeks the most promising, leading-edge research breakthroughs and expedites them to the clinical trial process. The ultimate goal ... give the boys that have Duchenne now a chance to live a normal life by expediting the availability of treatments/therapies and/or a cure that can give quality of life to Duchenne boys, much like insulin does for diabetics.
For more information on Duchenne muscular dystrophy and CureDuchenne, 3334 E. Coast Hwy. #157, Corona del Mar, CA 92625, visit our website at www.cureduchenne.org or call 949-721-4063.
About Catchpenny
Catchpenny is the hot, young band from Minnesota, who wrote and performed a wonderful song for CureDuchenne called "Chance for a Lifetime" (a song about parents' love for their Duchenne child). These compassionate young men, Christian Schauf, Zachary Schauf and Eric Straum, performed at CureDuchenne's first event, and were sincerely touched by the Millers' story and the fate that awaits Duchenne boys. Their contribution has been selfless, and through their music they are increasing public awareness of this fatal childhood disorder.
For more information on Catchpenny, visit their website at www.catchpennyband.com. Or send an email to christianschauf@gmail.com.
About Phil Solem
Phil Solem is one half of The Rembrandts, and is best known for the hit songs "Just The Way It Is, Baby" and "I'll Be There For You." Phil also has a rock trio called THRUSH with bassist John Fields and drummer Michael Bland. Operating out of Minneapolis and Los Angeles, Phil writes and records solo material and music with THRUSH, in addition to writing, recording, and producing for other bands, like Catchpenny. Phil also continues to perform and record with longtime friend Danny Wilde (The Rembrandts), and joins Catchpenny in support of CureDuchenne and its mission.
For more information on Phil Solem, visit his website at: www.philsolem.therembrandts.net.