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Legal Anxieties and End-of-Life Care in Nursing Homes

By Kapp, Marshall B
Publication: Issues in Law & Medicine
Date: Wednesday, October 1 2003
HEADNOTE

Abstract:

Many persons spend their final days as nursing home residents. It has been suggested that one set of factors powerfully and unfavorably influencing the quality of end-of-life (EOL) care provided in American nursing

homes involves the anxieties that nursing home providers experience regarding potential negative legal entanglements and repercussions associated with the provision of EOL care to their residents. This article critically examines the hypothesis that the quality of EOL medical care provided in nursing homes often is skewed in a perverse way because providers are driven unduly by legal apprehensions. The author offers practice and policy recommendations for trying to resolve or mitigate the tension present between legally defensive practice (real or perceived) by nursing homes, on one hand, and ethically optimal EOL care, on the other.

In the United States, individuals with serious, chronic physical and mental health problems and difficulties in carrying out activities of daily living have available to them an increasing array of services (e.g., home care, assisted living facilities, adult day care) that allow them to avoid or at least substantially postpone admission into a nursing home. Consequently, the acuity level of persons who do need to enter nursing homes today, because they are not capable of being cared for adequately in home and community-based settings, is considerably more severe than that found among nursing home residents even a short time ago.1 Given the nature of its present resident population, the modern American nursing home in large part may be accurately characterized as a place where many people go to die.2 "The probability that a nursing home will be the site of death increased from. 18.7% in 1986 to 20% by 1993," and "[c]urrent health care trends, including aging of the population and pressures to decrease hospital and home health costs, are likely to promote the use of nursing homes as a site for terminal care."3 "Most who enter a nursing home and stay for more than a few months will die there or after transfer to a hospital. They will not again live at home."4

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